THE CROWDFUNDING IS GOING REGIONAL
Help children with CF and donate for continued research with the aim to make Wind Tales available for all children with CF.
The results of the continued research, the pilots and user experiences will ultimately lead to reimbursement for the use of Wind Tales at home. Your donation will help with this research.
first clinical usertests are a success
The first clinical study was started at the UMC Utrecht in the fall of 2016. The objective for this study is to prove that Wind Tales is save, fun and inviting to play, and compliance enhancing. The first part of this study has been completed, the system has been tested and improvements have been made. Interim results show that all children like the game and are able to play it intuitively.
Your donation helps children with CF in need
Your donation will be used for funding the pilot study. You will also receive a reward as part of our gratitude.
Donation of €5 or more
When donating €5 up to €20 we would like to keep you informed via our newsletter.
Donation of €20 or more
When donating €20 up to €100 we would like to keep you informed via our newsletter and you will receive a certificate to show our gratitude.
Donation of €100 or more
When donating €100 to €1,000 we would like to keep you informed via our newsletter. In addition you will receive a certificate and a Wind Tales Artbook to show our gratitude.
Ongoing research for the use of Wind Tales at home
During the next fase of the study, from December onwards we will use the game at home with 25 patients. Objective is to demonstrate the potential impact on therapy compliance and the fit for home use. This reseach will take 2 months. Soon after the study Wind Tales will apply for the CE-mark of the product.
After market release the research will continue
Soon after market release and with the help of our clinical partners we wish to start a multisite longitudinal step by step study on how we can improve the therapy for breathing exercises. In this study we will look at the compliance and the quality of the exercises during an extended period of time so we can define the impact on the care process and the patients quality of life. Next to younger children we will investigate the use for youngsters and adults.
By using Wind Tales children with CF will have great fun doing their breathing exercises
Wind Tales is an innovative fun and attractive breathing controlled game to perform breathing and mucus clearing exercises at the clinic and at home. For CF patients it is extremely hard to do these exercises and compliance is low partly due to the existing boring and tedious exercises which are felt as an obligation today. Wind Tales aims to make a change by offering fun and attractive game play for this purpose. Personal settings and remote monitoring provide excellent tools for the multi-disciplinary-team to provide optimal care.
Why are these exercises so important
Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. It is not possible to cure CF and life expectancy is 40 years of age on average. Daily breathing and mucus clearance exercises are essential to clear the lungs from excess mucus, these are very time consuming and have a high impact on the entire family. Therapy compliance is relatively low, ranging from 30-40% on average, and is regarded to be a big problem. It most likely relates to health problems, exacerbations and hospital admissions and may reduce the life expectancy of the patient.
Breathing exercises can be fun with Wind Tales
Parents and care providers tell us that it is hard to let the children do their exercises. Madelon van Erven from Veenendaal, mother of two children with cystic fibrosis, experienced the difference when doing the exercises in a playful manner. ‘He likes to play, is concentrated the whole time and plays a lot longer. You are not doing your exercises, instead you are playing a game. It is an opportunity to do something fun together without thinking about the disease’. Not only children, also adults can use Wind Tales to do breathing exercises. This is part of our continued research.